December 18 2014

Carey Sparbel

“Some people wait their whole lives to meet their heroes, I gave birth to mine.”

I am a CF mom living in upstate New York. I am a single mom with three boys, two of whom have CF. Zachary, the oldest at 16, has CF along with his younger brother Alex, who is 13. My youngest Tyler does not have CF. They all play a bunch of sports at their school. Zachary plays varsity soccer at his high school. I am immensely proud of all of them.

Zachary was diagnosed at 5½ months, while Alex was diagnosed at birth. By the time I had Alex, we had the hang of the CF routine, but like any CF family it presents its challenges. Typically, my kids won’t do their first treatment session in the morning, so we can get to school on time. They will do their meds once they get home from school and then again before bed. As far as compliancy, I try to keep as strict a schedule as possible; we take care of everything we need to.

I am a firm believer that exercise has kept my kids out of the hospital. The only time they were every hospitalized was around when they were diagnosed. I think it also helps my kids feel normal. Really, though, it has been difficult for the kids to understand that CF is totally apart of them. They really feel it when they want to go to sleepovers, visit family or on vacation – things like that. With that being said, I want them, and anyone else with CF, to know that you can control CF, don’t let it control you.

We are a big sports family, I actually help coach some of my sons’ teams as well!
CF has brought my sons closer together.
I feel like any award my boys win is a huge accomplishment, Alex was just awarded defensive player of the year from his soccer team.
My favorite color is green.
I love prime rib.
Thanksgiving is my favorite holiday.
Green Mile is my favorite movie.
My boys are Bills fans, so am I.