Club CF 30+

People with CF who are LIVING, BREATHING and SUCCEEDING at 30+ may be very involved in their careers, climbing the corporate ladder and working on a relationship. Marriage, buying a home and starting a family are also common undertakings for people with CF, as they are living longer and benefiting from a better quality of life due to advances in therapies.

During their 30’s, CF patients may be doing more IV antibiotic therapies, more chest airway clearance therapies, looking into getting a Mediport to make things easier, maintaining their health through exercise and compliance, and coming up with clever ways to manage all of this while socializing.

If you are one of the many people LIVING, BREATHING and SUCCEEDING with CF, we want to hear from you! Show the world what you have done!
Click here to submit your story. All applicants will receive a CLUB CF t-shirt.

November 12 2014

Kayla Vess

I was born and raised in Missouri, and diagnosed with CF at 3 months old. Now, I am almost a year post double-lung transplant – my life has gone through an enormous change. Although I was always fairly healthy before my transplant, my new lungs have given me the opportunity to really get into the gym and become an athlete. Exercising now plays a huge role in my life. I feel stronger from my daily trips to the gym in which I lift weights and focus on cardio workouts. Something that I am very proud of is that I was able to finish a sprint-triathlon only eight months after transplant. One day I hope to compete in an Ironman. I would also love to do the 65 mile, 65 Roses, bike ride one day. Riding my bike is definitely one of my favorite hobbies.

I have made quite a few sacrifices to maintain my health. Cystic fibrosis certainly is an added weight when it comes to my relationships with family and friends, but I know I have to give up social time so I can keep doing the things that I love. CF is a time consuming disease. Despite having CF, I do think I am very outgoing and I love spending time with my family and friends, there is nothing better.

People should have faith in modern medicine!

My favorite color is Pink.
I have visited Hawaii in the past; I want to go back someday.
Christmas is my favorite holiday.
I love Chinese food.
My favorite movie is Legally Blonde.
Soccer is my favorite sport.

May 02 2014

Anna Modlin

“Never let fears get in the way of your dreams”

I have dealt with CF pretty much since the beginning. I was diagnosed at 18 months, and grew up in the San Francisco, Bay Area. My mom basically threw me in the pool at 5 years old, and that’s really when I found my love for swimming. That was also when we first saw the impact that exercise can have for CF patients, I didn’t cough once that night after first being in the pool. A few years later, I got into competitive swimming and have been competing ever since. At first, I won many races and was very successful at a lot of my meets. Later in life, though, I felt that my lungs were holding me back from achieving my true potential as a swimmer.


Although exercise and swimming were a huge part of my life, I found that my treatments were always the difference maker. Because of this mentality, I was able to complete my undergraduate degree in four years and then my master’s in three years, both of which in counseling psychology at Santa Clara University.
After I completed school, though, my health seemed to deteriorate pretty rapidly. Four years after graduating with my Master’s, I was listed for transplant and underwent a successful double-lung transplant in November 2010. Since transplant, I have found that exercise makes a huge difference in daily life. I can definitely tell the days apart when I do and do not work out.


Some of my greatest accomplishments have come after transplant. I got back in the pool and started swimming competitively again. I have competed in the Transplant Games of America and have won five gold medals. I also took part in the World Transplant Games in South Africa and won two gold’s and one silver, plus a bronze in a relay event. My new lungs have given me the opportunity to swim freely, something I am truly grateful for.

My favorite color is purple

I love cheeseburgers

Thanksgiving is my favorite holiday. I received my lungs and a new lease on life two days before Thanksgiving in 2010.

My favorite movie has to be the Princess Bride.

Michael Phelps has always been an icon for me.

One word that describes me is certainly, perseverance.

If I could give one piece of advice to a newly diagnosed CF patient, I would tell him or her to NEVER GIVE UP!

December 17 2013

Dr. Majid Hameed

I grew up and still live in Kashmir, India – a place where a CF diagnosis is extremely uncommon. When I was younger, I was misdiagnosed a number of times with everything from asthma to tuberculosis. When I was finally correctly diagnosed with CF at the age of 22, I had already developed severe bilateral bronchiectasis.

In spite of my reoccurring illness and with the support of my family, I was able to complete my education and become a physiotherapist. I am grateful every single day to my parents for providing me with all the support possible, even though they do not completely understand my disease.

Today, I exercise regularly to stay healthy and am motivated to remain committed to my treatments and physical health by my responsibilities to my family, my wife and child, and by my passion for my career and goals. I refuse to be a mute spectator to CF.

My favorite…
Color: blue
Food: mutton biryani
Movie: Anand
Song: My Heart Will Go On by Celine Dion
Sport: Cricket
Athletes: Shahid Afridi and Imran Khan

If I could visit anywhere in the world, I would visit… Holy Mecca and America.

If I could give someone recently diagnosed advice, it would be…
No matter how many times you break down, always find the courage to get back up. Giving up is never a choice.

May 21 2013

Ryan Nickson

“Even though I am still very private and do not tell many people about my CF, I am happy to share my story and hope it can positively affect at least one person’s hope of having children.”
 
I am an extremely private person, and for most of my life, I kept my cystic fibrosis diagnosis a secret because I did not want my friends to treat me differently. I was sneaky about taking my medications, and if seen, I would tell friends they simply aided digestion or even throw them away. In my youth, I did not fully understand how important my medication was.
 
In spite of CF, I have generally lived a normal life. I played soccer, cross country, and track during high school, and have continued running and began playing hockey. My proudest athletic moment was in 1999, when I placed fourth in Division 1 Ohio 4x800 meter relay at 7:55.6 – which is still a school record! As I get older, I have to work harder and harder to stay active, but I am determined to stay healthy.
 
My wife and I recently became the parents of healthy, beautiful twins, a boy and a girl, after a difficult series of genetic tests and a testicular harvest. They were born at 32 weeks and 4 days. We are excited for our focus to shift to the kids and for our family to grow by two.
Even though I am still very private and do not tell many people about my CF, I am happy to share my story and hope it can positively affect at least one person’s hope of having children.
 
Things I Love: Running, cars, hockey and making improvements around the house
Favorite Color: Green
Favorite Food: Chinese
Favorite TV Shows: Burn Notice and Psych
Favorite Sport: Football
Dream Vacation: Somewhere warm and beachy
One Word to Describe Me: Competitive
Advice to People With CF: I would encourage them to never give themselves excuses and to push themselves every day
April 30 2013

Josh Mogren

“I will continue to share my story and try my best to touch as many lives as possible by always going by my motto “I rather try and fail, then fail to try.”
 

My name is Josh Mogren. I am 32 years old, and I’ve been married to my wife, Carly, for almost six years. I am very happy and blessed to say that we live a wonderful life together with our puppies! Although life has been great for me, I can’t say it has always been easy. I was diagnosed with CF at the age of three months, and I also had to watch my sister pass away from CF at the age of 16, which was by far the most difficult obstacle I have had to overcome in my lifetime.

My family - which consisted of my mother, father, sister and me - lived in Lake Elmo, Minn., which is a suburb of St. Paul. I was very privileged in that my parents never made CF a focal point. Although it did take up a great deal of my time, they always wanted me to live my life as normal as possible. This meant going to school, doing activities and always trying new things. My mother always said, “Never let anything hold you back,” and this has stuck with me always. It was very difficult to watch my sister be sick most of her life, but this has helped me always live my life to the fullest and do my best to help others. I realized I could either feel sorry for myself or take care of myself and help others.

I received a degree called personal and civic advocacy, and I use this when I speak publically and write for people to see. I hope any bit of advice I have can help someone else in their life. When I am not working, I also enjoy karaoke and watching football and baseball.  For volunteer work, I love to help out for Big Brothers and Big Sisters, and I also speak at local schools. To me, motivational speaking is so important, and it really helps brighten the days of many who are going through difficult times in their lives. There are many different ways to reach your target audience, but I personally enjoy using a puppet named Moganko to reach out to children who are dealing with CF. They are able to learn about CF through humor and honesty, and this is truly rewarding to me. I will continue to share my story and try my best to touch as many lives as possible by always going by my motto “I rather try and fail, then fail to try.”

Favorite Holiday: Thanksgiving
Favorite Food: Italian
Favorite Pastime: Baseball and Football
Nickname: Mogey
One Word to Describe Me: Caring
Role Model: Anyone who does the best they can every day
You can find Josh on ... Twitter, Facebook, YouTube and his blog (http://www.welcometojoshland.com/)

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