Club CF 30+

People with CF who are LIVING, BREATHING and SUCCEEDING at 30+ may be very involved in their careers, climbing the corporate ladder and working on a relationship. Marriage, buying a home and starting a family are also common undertakings for people with CF, as they are living longer and benefiting from a better quality of life due to advances in therapies.

During their 30’s, CF patients may be doing more IV antibiotic therapies, more chest airway clearance therapies, looking into getting a Mediport to make things easier, maintaining their health through exercise and compliance, and coming up with clever ways to manage all of this while socializing.

If you are one of the many people LIVING, BREATHING and SUCCEEDING with CF, we want to hear from you! Show the world what you have done!
Click here to submit your story. All applicants will receive a CLUB CF t-shirt.

January 30 2009

Tiffany Christensen

I have lived with my illness from the time I was born. At 6 months of I began my acquaintance with in-patient hospital care at the age of 12. In spite of extensive ongoing treatments and procedures—at home and in various hospitals throughout the United States—at twenty-one years of age, I was placed on the list for a double lung transplant at UNC Memorial Hospital.  Waiting a total of five long and difficult years, during which, my lung function dropped to 18% capacity, I received my first set of donor lungs in April of 2000.

I enjoyed a level of health and energy I had never known until May of 2002 when I was diagnosed with chronic rejection. There were few treatment possibilities and I began to grow gravely ill, even more so than before my first transplant. My lung function was down to 10% of capacity and was told I only had months to live. Though, as my outer body weakened, my inner journey opened and I found unexpected gifts of insight, perspective, humor and strength. I began to know an inner peace I had never thought possible.

Due to a series of wonderful and unusual events, I was able to have a rarely performed second lung transplant just in the nick of time.

After the surgery, I awoke with a clear awareness of being “called” to work with those touched by illness and death. As soon as my recovery allowed, I trained as a Hospice Volunteer and began developing my talks and workshops.  Combining my patient experiences with my acting and improvisation training, I have created programs that are unique, fun, interactive, thought-provoking and inspirational. For those interested in seeking private guidance, I also provide illness coaching through email or over the phone.

I believe that, given my life experiences, it is my duty to lend a hand to those struggling to find their way through the world of illness.

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