Club CF 30+

People with CF who are LIVING, BREATHING and SUCCEEDING at 30+ may be very involved in their careers, climbing the corporate ladder and working on a relationship. Marriage, buying a home and starting a family are also common undertakings for people with CF, as they are living longer and benefiting from a better quality of life due to advances in therapies.

During their 30’s, CF patients may be doing more IV antibiotic therapies, more chest airway clearance therapies, looking into getting a Mediport to make things easier, maintaining their health through exercise and compliance, and coming up with clever ways to manage all of this while socializing.

If you are one of the many people LIVING, BREATHING and SUCCEEDING with CF, we want to hear from you! Show the world what you have done!
Click here to submit your story. All applicants will receive a CLUB CF t-shirt.

April 30 2013

Josh Mogren

“I will continue to share my story and try my best to touch as many lives as possible by always going by my motto “I rather try and fail, then fail to try.”
 

My name is Josh Mogren. I am 32 years old, and I’ve been married to my wife, Carly, for almost six years. I am very happy and blessed to say that we live a wonderful life together with our puppies! Although life has been great for me, I can’t say it has always been easy. I was diagnosed with CF at the age of three months, and I also had to watch my sister pass away from CF at the age of 16, which was by far the most difficult obstacle I have had to overcome in my lifetime.

My family - which consisted of my mother, father, sister and me - lived in Lake Elmo, Minn., which is a suburb of St. Paul. I was very privileged in that my parents never made CF a focal point. Although it did take up a great deal of my time, they always wanted me to live my life as normal as possible. This meant going to school, doing activities and always trying new things. My mother always said, “Never let anything hold you back,” and this has stuck with me always. It was very difficult to watch my sister be sick most of her life, but this has helped me always live my life to the fullest and do my best to help others. I realized I could either feel sorry for myself or take care of myself and help others.

I received a degree called personal and civic advocacy, and I use this when I speak publically and write for people to see. I hope any bit of advice I have can help someone else in their life. When I am not working, I also enjoy karaoke and watching football and baseball.  For volunteer work, I love to help out for Big Brothers and Big Sisters, and I also speak at local schools. To me, motivational speaking is so important, and it really helps brighten the days of many who are going through difficult times in their lives. There are many different ways to reach your target audience, but I personally enjoy using a puppet named Moganko to reach out to children who are dealing with CF. They are able to learn about CF through humor and honesty, and this is truly rewarding to me. I will continue to share my story and try my best to touch as many lives as possible by always going by my motto “I rather try and fail, then fail to try.”

Favorite Holiday: Thanksgiving
Favorite Food: Italian
Favorite Pastime: Baseball and Football
Nickname: Mogey
One Word to Describe Me: Caring
Role Model: Anyone who does the best they can every day
You can find Josh on ... Twitter, Facebook, YouTube and his blog (http://www.welcometojoshland.com/)

September 04 2012

Andy Lipman

If you start off saying a child is special because she suffers from a handicap, that is a disservice because you are robbing her of what she might become on her own_Frank DeFord

My parents lost my sister to cystic fibrosis before I was born, so when I was diagnosed with that same disease at birth, my parents were understandably protective of me. They always sought out the best doctors at the best facilities available and learned as much about CF as possible. In spite of their constant, loving support, I often felt alienated when I was younger – and reading all the negative facts about my disease made it even worse.

As I grew up and started playing tennis in high school and intramural sports in college, I found myself feeling more and more comfortable allowing people into my life, allowing them into my world of cystic fibrosis. Sports helped my health and were a type of therapy for me. I have found exercise to be both physically and mentally therapeutic. Every time I work out or play a sport I feel like I am taking an active role in beating CF.

My toughest day with CF was the day I learned that my lung function was down severely while my wife was pregnant with our second child. I struggled trying to deal with my own mortality during such an important time in my family’s life. Although I did not deal well at the time, looking back I realize that going through that taught me how to effectively deal with my disease and the ups and downs that accompany it.

While I have gone through rough patches, I have remained compliant for most of my life. I take medications and do therapies regularly and try to stay as active as possible. I am constantly motivated by my wife and children. I want to experience every single one of their celebrations with them. I want to see my kids grow up and live for decades with my wife. My family pushes me to forget the statistics of my disease and to see every day I have with them as a gift; to push my way through the difficult days and live to see a cure.

My favorite:
Color is… green
Food is… sushi.
Holiday is… July
Movie is… Karate Kid
Musical artist is… Foo Fighters
Sports team is… Atlanta Braves
I love spending time with my kids, playing softball, and keeping fish tanks.
I am most proud of my marriage and two children, the three books I have written, and to be the first person with CF on the Georgia CF Board.
If I could visit anywhere in the world, I would go to Italy with my wife.
My family and friends would describe me as relentless.
If I could give someone just diagnosed with CF any advice, it would be… Do not read statistics – every CF case is unique. Work hard and appreciate your life. Doctors may be able to measure lung function, but they can’t measure your heart.

June 11 2012

Joe Sleeper

“Breathe Easy”

I was tested for and diagnosed with cystic fibrosis at the age of five when my younger sister was diagnosed. In spite of my parents’ encouragement for both of us to stay active and compliant, my sister was always sicker than I was. When I was seventeen, my fourteen year old sister passed away from the disease that we shared. I became despondent and lost almost all of my hope. Watching my sister die from CF convinced me that I would eventually suffer the same fate; that treatments and compliancy were a just delaying the inevitable and forcing me to waste the time that I did have.

My bad habits caught up to me when I was 27 years old – MY PFTs were at 30 and I weighed around 115 pounds. I knew that if I did not change my attitude and my lifestyle that my life would actually be over, so I made changes. I began to see my treatments and exercise as an investment in my well-being, as tools to extend my life. Now, I exercise regularly with my soon-to-be wife, Jennifer, at our local fitness center where I swim, lift weights, and do cardio. I have found that exercise positively affects my health and is the perfect addition to my medications and treatments.

For so long I lived my life thinking that I would never see thirty – but now I am moving into my mid-30s, have a job I love, and am marrying a woman I don’t always think I deserve. I am so thankful for my life and for my time here with the people I love. I know that my sister is proud of the way I have turned my life around and I can honestly say that I am proud of myself and happy with where I am in life.

My hobbies… riding motorcycles, photography, tattoos, live music, being outdoors, cooking delicious meals with my lady.
Favorites…
Color: orange
Holiday: Memorial Day
Movie: Pulp Fiction
Musical Artist: The Meters
If I could travel anywhere in the world, I would visit… the Mediterranean.
My friends and family would describe me as… geeky.

If I could give someone who was recently diagnosed any advice, it would be:
A CF diagnosis is not the end of the world – especially with all of the advances being made today. You will have to work harder than most people, but if you care for yourself, you can live a full, happy life.

 

July 06 2010

David Wagner

“Someday CF will no longer stand for cystic fibrosis, it will stand for Cure Found.”

I have a very unique view of cystic fibrosis. I was adopted into a family in which there are seventeen people who have the disease and consider myself blessed to be surrounded by such loving, special people. 

After graduating from Hennepyn Technical College with a degree in nursing, I became a nursing assistant home healthcare provider. I have chosen to specialize in caring for patients who have CF. While this can be risky due to cross-contamination issues, I take every precaution possible to ensure that both myself and my patients are safe. Nursing others with cystic fibrosis is my calling – it enables me to give back to my community and help people who battle the same problems I deal with daily.

Outside of work, I enjoy volunteering as a part of a neighborhood watch program, which allows me to exercise while keeping my community safe. I also help run a 24-hour CF support group hotline where CF patients and their families can call any time for information, support, or just a few friendly words.

While I can no longer play hockey, I still enjoy swimming, bowling, and staying active in as many ways as possible. I know how important it is to stay compliant with my medications and treatments, even when times are difficult. Without compliancy, I would no longer be able to help my community and reach the goals I have set for myself. I plan on staying healthy and remain happy in my life. Having cystic fibrosis does not mean that I cannot live a happy, fulfilling life.

My favorite…
Holiday is Christmas.
Food is alligator.
Pastime is hockey.
Movies are the Harry Potter series.
Music genre is country.
Color is red.
My nickname is the CF Kid.
My friends and family would describe me as helpful.
My role model is Kirby Puckett.
My dream vacation is to go to Disney World.

February 13 2009

Karen Vega

“Cystic fibrosis has not determined my life; I have determined it for myself.”
 
My brother and I were both diagnosed with cystic fibrosis at a young age, but were fortunate because our parents did not treat us differently. I have always lived in New York City, but grew up specifically in the Bronx. I played soccer and was a cheerleader – both activities that kept me in great shape. My youth, while it was affected by CF, was not shaped by the disease.
 
I attended Fordham University and eventually graduated with a degree in accounting, and then worked on Wall Street for six years. I have trained and completed a New York City Marathon and continue to run and train to this day. None of these things would have been possible without the support of my family and their acceptance and encouragement.
 
I am now in the newest, and most exciting, stage of my life. My husband Alex and I have been married for six years and have twin boys, Jayden and Logan, who are now my full-time job. Prior to having children, my husband was tested to make sure he was not a carrier for CF. Both of my boys are healthy, and knowing that they are going to live long, full lives only makes me more committed to remaining medically compliant and physically healthy. With help from my family, I have been able to settle into a routine to make sure that both my boys and I are taken care of every day.
 
Cystic fibrosis has impacted my life and will continue to do so, but I believe that I will persevere and will never, ever let it run my life.
My favorite…
Holiday is Christmas.
Food is ice cream.
Color is purple.
If my family had to describe me in one word, they would say I am… determined.
My dream vacation is to visit Australia.
I love to scrapbook and run.
I can be found on Facebook and Cystic Life.

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