March 07 2016

Karen C.

I am 60 years old, married with a daughter, and am living, breathing, and succeeding with cystic fibrosis. When I was younger, no one knew I had the disease – we all thought I just had chronic respiratory issues. Because my CF mutation does not affect my digestive system, I was not diagnosed until I was 55 years old.

Because my diagnosis came late in life, I led a typical life – the only major medication I had to take was inhalers regularly. About twenty years ago though, my health took a downward turn. Now, I am listed on New York and Massachusetts for a lung transplant.

After my diagnosis, I started doing CF treatments every day – four to five nebulizers in the morning with a vest, and again in the evening. I am currently in a pulmonary rehab program, involved in yoga classes, and try to stay active all of the time. I am motivated to stay compliant with all of these treatments and remain fit because of my family.

My favorite…
Color is purple.
Food is chocolate.
Musical artist is Sting.
And team are the Mets.

If I could visit anywhere in the world, I would go to Egypt to see the pyramids.

My role model has always been my mother because of the kindness she showed everyone she encountered.

If I could give someone recently diagnosed with CF some advice, I would tell them to read and learn as much as possible – and to seek out your local CF Clinic. Stay positive… and stay compliant!