February 13 2009

Karen Vega

“Cystic fibrosis has not determined my life; I have determined it for myself.”
My brother and I were both diagnosed with cystic fibrosis at a young age, but were fortunate because our parents did not treat us differently. I have always lived in New York City, but grew up specifically in the Bronx. I played soccer and was a cheerleader – both activities that kept me in great shape. My youth, while it was affected by CF, was not shaped by the disease.
I attended Fordham University and eventually graduated with a degree in accounting, and then worked on Wall Street for six years. I have trained and completed a New York City Marathon and continue to run and train to this day. None of these things would have been possible without the support of my family and their acceptance and encouragement.
I am now in the newest, and most exciting, stage of my life. My husband Alex and I have been married for six years and have twin boys, Jayden and Logan, who are now my full-time job. Prior to having children, my husband was tested to make sure he was not a carrier for CF. Both of my boys are healthy, and knowing that they are going to live long, full lives only makes me more committed to remaining medically compliant and physically healthy. With help from my family, I have been able to settle into a routine to make sure that both my boys and I are taken care of every day.
Cystic fibrosis has impacted my life and will continue to do so, but I believe that I will persevere and will never, ever let it run my life.
My favorite…
Holiday is Christmas.
Food is ice cream.
Color is purple.
If my family had to describe me in one word, they would say I am… determined.
My dream vacation is to visit Australia.
I love to scrapbook and run.
I can be found on Facebook and Cystic Life.